Wednesday, August 10, 2011

Little Things: A Poem for Mom


August 19, 2009
  
There’s much to be said about little things
A scarf or a pin and your sweet wedding rings
The pieces of you that are left from a life
When you gave your heart being mother and wife
Oh, what joy those little things bring.

There’s much to be said of our memories
When talking with you was done with such ease
How precious in life those “Mom chats” are
With topics we covered on the phone from afar
Sometimes I wish that time we could freeze.

There’s much to be said of a broken heart
That mourns the trauma that tore us apart
The depth of my sorrow is too deep to share
Of having to say, “Goodbye” to you there.
I wonder if sadness will ever depart.

There’s much to be said of a muted glee
What I lost through death, in turn set you free
The cancer, the pain that you have endured
Your body and spirit are now fully cured
This belief in my soul, it comforts me.

There’s much to be said about little things
A look or a smile, or songs we would sing
The thoughts of you that are left from a time
Too rich and too full to be captured in rhyme
Oh, such endearment these little things bring. 



In honor of Mavis Peacock: 5-13-34 to 3-15-09

Monday, August 8, 2011

Glass Half Full: My 5 Year Bandiversary


Today is a very special day in the life of Julie.  It is my 5th Bandiversary.  5 years.  In one sense, it doesn’t seem like it could possibly be that long.  In my mind, it could be just last week that I was at my first support group meeting listening to a room full of post op people talk about their experience.  In another sense, I feel like I’ve been at this for decades. 

I have to be philosophical about my Weight Loss Surgery (WLS) experience because it is a story that is fraught with both triumphs and tribulations.  It is not a story of straight forward failure or success.  The band, from a medical stand point, did exactly what I had hoped it would do. It has helped me maintain a perfectly normal size for 5 years.  Within those 5 years, I have not developed any of the co-morbid conditions that I was seeking to prevent: heart disease, diabetes, high blood pressure, or cancer.  The band did its job as an intervention to my morbid obesity and continues to do its job as prevention for potentially inherited co-morbidities. 

Because of the band, there are so many things in my life that I can do now that I couldn’t, or wouldn’t, do before.  The weight loss has afforded me a tremendous amount of freedom where my sheer bulk used to shackle me and my shame used to bury me.  Before WLS, I could never have imagined riding a horse again, sitting comfortably in the middle seat of the airplane, climbing a volcano AND riding a donkey in Greece, getting into a kayak, power snorkeling in the Caribbean, and riding any roller coaster that I wanted to without fear of not fitting.  Before WLS going to a movie theater, getting on a bus, walking into a room where all of the chairs had arms, clicking the seatbelt of cars, and finding a formal gown were all horrifying experiences that I avoided if at all possible.  I did not realize how many excuses I had made in my life to avoid experiences that would embarrass me due to my size.  My lap band freed me from that. 

WLS has given me the opportunity to know some the most amazing people on earth.  First…. The team.  Our amazing team!  These professionals have stuck by me through thick and thin.  There have been times during my five years that I have been very, very ill.  The care and concern shown to me has been remarkable.  I will never forget being so exhausted and frail as my first lap band was failing and having Bob say to me with such compassion, “I think we’re going to keep you.”  I just needed somebody to make a decision.  I was too sick and clinically depressed to do it for myself.  Bob did.  They admitted me and got me rehydrated.  And then, a few months later, Dr. Weiss and Dr. Heneghan, together, took me to emergency surgery after 8pm on a Friday night to remove “George” and give me “Tommy” (long story!).   All of these men have had a hand in saving my life many times over the last 5 years.  I could never thank them enough… surely thank yous are not nearly enough. 

I could write for hours about each of the professionals, because they all mean so much to me.  I mean Cindy was a huge part of my journey.  I so deeply appreciate Chris and all she has brought to this path of mine.  And Dr. Mooney helped to finish my physical transformation with his unbelievable skill in reconstructive surgery.  I am blessed to know them all.  I am doubly blessed that they are all so good at what they do. 

The other group of incredible people that my lap band brought me to is this support group.  Oh, how I love this group.  So many have come and gone, and so many have sewn their seeds into my life.  I have been enriched by the loving, giving, intelligent, fun, caring, talented co-travelers who have shared time with me on this path.  You have filled my days with joy and laughter in so many ways…. And we have shared pain and sorrow equally.  You embrace victories with a zest for living that is enough to knock a person off her feet… and you do not shy away from the hurts that sometime encroach on this journey.  No, you shoulder the load and make it lighter than it otherwise would have been.  Who could ask for more?  I have no doubt that a loving God designed groups to work just this way.

My weight loss opened my eyes to a very ugly side of life: the deeply real, personal, understanding of obesity discrimination.  I was mostly unaware how much I had been affected by my obesity until I became a normal-sized person.  Gradually, as the weight came off, I began to notice that people treated me differently.  I am no longer “invisible” to the world.  People speak to me and make eye contact with me in passing.  Gentlemen rush to open doors for me or to carry heavy items for me.  Before my weight loss, I rarely had a gentleman rush to do anything for me.  I surmise that it is because they did not see me exactly as a “woman.”  I was just a “fat person” who could carry that package and open that door just fine. To the majority of the world, I was not only invisible; I was mostly genderless.  

It was a disgusting realization when I discovered that I was being treated differently as I lost my weight.  Waiters and Waitresses treat me differently.  Sales associates treat me differently.  Even those in the academic and professional world treat me differently.  Suddenly, I seem to have developed approximately 30 new I.Q. points.  My thoughts and ideas are taken much more seriously… or at least I don’t have to repeat myself as much to have them heard.  Most of us know that fat does NOT equal stupid.  Too bad most of the rest of the world hasn’t discovered that yet.

And then there’s my body’s relationship with this lap-band…  It is no secret that I have struggled with finding the balance between my very sensitive body and this tool that I’ve been given.  I have desperately wanted it to work for me.  I spent the first several years driving me and the band beyond the limits of what was reasonable to maintain.  I thought for sure that I could find the balance and then simply live my life as a normal bandster.  I pushed me, I pushed Bob, I pushed Dr. Heneghan… and did I mention that I pushed me?  I just knew I HAD to get this right. I thought that I was smart enough to figure out a way to be “perfectly” adjusted so that my body would tolerate the tight times, but that I wouldn’t be hungry during the good times. 

It was not be.  For some reason beyond my comprehension, my body puffs up with the slightest provocation. And, when I retain fluid, my lap band becomes too restricted … often without warning.   This is not a flaw with the band; this is problem with my body’s reaction to the band.  The band is a static ring, and it doesn’t do bad things to me. My body just doesn’t want to cooperate with it.  It took me a long time for me to accept this.  It took me a long time for me to stop asking the team to make my adjustment SO perfect that I would choke on my own spit the next time I retained fluid. 

I had to give up the ideal of perfectionism.  I have actually given up on living a normal life with this lap band.  It is not defeatist, it is realistic. That is part of the bitter sweetness of this anniversary.  All of the marvelous things this weight loss surgery process has given me make the current struggle still worth while.  It didn’t turn out the way I had expected that it would.  But there is always a matter of perspective.  Perspective is a conscious choice; glass half full or glass half empty. I got the great and wonderful things of WLS.  The rest of it is an on-going story. I’ll take all the good stuff that this journey has afforded me, and mingle it with the struggles of a not-perfect solution. By doing so, I will continue to live a life that is lighter because I am unshackled from the ravages of obesity and free from the shame that weighed me down.

5 years.  It is a milestone by anyone’s definition. As a culture, we celebrate such events in a variety of ways. For me, there will be no particular, overt celebration. This particular milestone shall be marked with a simple glass of water on my counter as I turn in for the evening.  The symbolic will become the tangible as I choose to fill my glass much more than half full. 

Monday, August 1, 2011

After the Big Game (AKA: Being Normal)



The confetti has stopped falling.
The crowds have cleared out of the stands.
The pep band is packing away their instruments.
There will be major headlines in tomorrow's papers!
Yet I stand here, at center court, sensing that the pinnacle of all the excitement has just been reached. I have just defeated an historic rival, and this is MY moment.
After this, there will only be an occasional line or two written in the newspaper about the day of the "big game."
Someone may stop me in the street every now and then to give me a big high five and a fond elbow chuck to the ribs.
And rarely, conversations might come up where someone remembers this day and asks me to recount how it came about.

It wasn’t supposed to be like this.  I’m not sure what exactly it was supposed to be like, but this isn’t it.  How could it be that a person can do what seems to be a monumental task, only to find themselves standing at center court in silence?  The cheers, the pats on the back, the gasps of delight and the public congratulations were so prolific and so intoxicating while I was losing weight.  Everyone seemed to have a kind or encouraging word to say, regardless of the situation.  But as the newness of my achievement has worn off, those things have all but trickled to a stop. People have become accustomed to me as “normal” sized. They see me walk down a street or into a room and I’m “just Julie.”  I get a normal greeting with none of the additional delight that has been my experience for the past two years. 

How can that be?  I mean, I’ve just won the big game for the home town team.  I’ve just beaten an age old rival.  This is what they all wanted for me. I was obese for nearly forty years.  I’ve been “normal” for less than one.  I’m not used to normal.  How in the world can they be used to it?

The truth is that the task of being normal isn’t even over for me.  I have to play in that same championship game every single day of my life in order to maintain my weight loss. To all concerned, I have reached maintenance weight.  However, my disease of chronic morbid obesity is not cured. The disease is merely in remission. It doesn’t go away just because my weight “looks” normal. The weight loss surgery helps with the battle tremendously and even makes it winnable. But, it will never cure the obesity. I guess maintenance is not the sexy battle.  A daily struggle to maintain a weight is not worthy of cheers or atta-boys. It doesn’t make headlines, and unless I mention it, it doesn’t even pop up on other people’s radar screen. Come to think of it, it is an unseen battle much like the battles that are fought by many individuals who are faced with a variety chronic diseases.

My surprise at the silence associated with becoming a normal sized person has a history.  There’s a huge build up to weight loss surgery; the research, the evaluation by the bariatric team, the medical tests, the decision to go ahead with the surgery, the pre-op weight loss, attending support group, hearing the stories, asking questions, breaking the news to friends and relatives, clearing the house of contraband, dealing with the pre-op bowel prep, and waking up before dawn on the day of surgery.  While at the hospital, the patient is the center of attention.  It is all new, it is all exciting.  A new era has begun.  There is hope that a solution to the chronic morbid obesity with all of its baggage has finally been found.  There is also a companion tension which niggles, “what if this doesn’t work for ME?”

The first several months I think I was simply in amazement.  I could not believe that it was even possible for weight to come off that fast. I was going through clothing sizes like nobody’s business.  I was trying not to shop too much, but it was WAY too much fun.  I would tell myself that I was buying things that would fit for several months.  HA!  I just wanted to look better and better as the weight came off.  Each time I saw a friend or a co-worker, especially if there had been an extended period of time between contacts, there were squeals of delight, looks of amazement, and requests for me to share my “secret.”  I also found that I was like a born again WLS-er.  I wanted to save every obese person in the world. 

I became the center of attention on a regular basis; and all I had to do was walk in a room.  I was melting into a rather attractive 40-something woman who already had a lot going for her before the weight loss ever happened.  I loved turning heads.  In the past, the only heads I turned were the ones that either turned away in disgust of my largess or turned to look with a scowl at the enormity of my size.  I felt like I was walking on air to get positive attention in relation to my physical appearance.  It was a brand new experience for me. 

There was this odd sense of power that came along with becoming attractive by society’s standards.  I am a tall woman with exceptionally long legs.  So, as I became smaller and began to walk with my head up in a confident stride, heads turned; especially those that were of the male persuasion. I smiled and reveled in the ability to make a teensy bit of wave wherever I went.  Of course, being the dramatic performer that I am, I never just eased into a room.  I made an entrance.  Making the wave, no matter how slight, was intoxicating.  Feeling so powerful and accepted for the first time in my life made the daily work of becoming thinner and healthier extremely easy to deal with.  There were immediate rewards.  There was an instant sense of gratification.  If I had a brief moment of fear or disappointment about my progress, all I had to do was to walk out my door and into any place where there were people in my small town.  I would bump into someone who hadn’t seen me in a while and get “the squeal.”  There. I’ve had my fix for the day. 

I was not prepared for what would happen when the stadium lights went dim and the crowds grew silent. Somehow I had unconsciously come to believe that being thinner would always be fun.  I had the mistaken idea that thin girls were at the center of attention simply because they were thin.  I know that I didn’t believe that being thin would solve all of my life’s problems, but I did have some deep seated, unspoken belief that it would be just shy of fabulous. 

It’s not.  It’s just normal.  Compared to the previous two years of my life, it’s actually down-right boring.  The high that I have been living on is gone. The days of getting an instant adrenaline and endorphin fix through “the squeal” are past.  I’m sure that the dosage tapered gradually, but my awareness of its absence seems to be as if some one did an intervention and made me go cold turkey. 

And I still have a battle to fight.  I have to play the big game on a daily basis in order to keep the age old rival of morbid obesity at bay.  It’s just that the battle is confounded by the fact that it occurs in an empty stadium.  There’s no confetti, no pep band, and no roaring crowds. I can ASK the cheerleaders to be there if I really need them.  But, I can’t ask them to follow me around twenty-four seven.  I would wear them out.  This means that one of the toughest parts of normal is that I have to battle my rival without an artificially elevated level of performance enhancing neurotransmitters. 

Somehow the foe has to be held at bay for intrinsic reasons… and the premier reason can’t be fear.  Fear is an easy substitute for elevating those performance enhancing lovelies that my brain creates.  If I stay in a perpetual state of fear that my weight is going to come back, then fight or flight keeps the ole adrenalin pumping.  It’s certainly not as fun as the atta-boys, but it works (at least temporarily).  I’m not sure how to make the transition from stadiums full of cheering fans to a still, small voice inside of myself as the motivation to continue my daily, boring, mundane attempt to hold the line against a rival that will push back at the first opportunity.

It is tempting to consider artificial means of feeling the high again: Drugs, alcohol, shopping, gambling, sex, anorexia, etc.  There are many, many options available; most of them wildly unhealthy.  It would be dishonest of me to write this particular chronicle without admitting that I have considered, even tried, to maintain the intoxication through some of these unhealthy, artificial means.  Without the crowds and the cheers, the very same emptiness that, in part, fueled my obesity still exists.  The surgery did not take that away.

Fortunately (or unfortunately) I have too much knowledge to allow myself to get away with unhealthiest of stuff for long periods of time. So I move to the healthy side of creating a high. I have tried adventure, natural high type activities such as whitewater rafting, kayaking, roller coasting, snorkeling, and horseback riding.  However, the highs of such adventures are short lived.  I don’t have the resources nor the time to become a professional dare devil.  That’s what it would take to keep me excited and focused without becoming bored with the every day. 

The every day.  The crux of it is all is this: I don’t deal with normal very well and become restless very easily.  I suit up each day, put on my best game face and go to the stadium.  I show up only to find myself playing alone.  It’s just me and the rival.  My rival, morbid obesity, is always there. Occasionally, a few people play along with me, and every now and then there are two or three spectators in the stands.  I find myself wanting to go out and round everyone up again… “HEY, EVERYONE… c’mon…. there’s a big game today.  Remember?  The BIG game.  It’s still on.  It happens every day. It will be fun… really…. umm… tickets are free…. hellooooo…. anybody? ” I’m left to figure this out.  I have to maintain my weight loss and deal with an emptiness that craves to be filled with either food or excitement. So, I’m clueless as to how to do normal, boring and mundane. It seems completely foreign to me to live the every day with an occasional spark of spectacular, rather than the spectacular with an occasional spark of normal.  Is it possible that part of the solution is to begin to live my life outside of the stadium? 

What? Leave the stadium?  But, I just won the big game.  There should be more.